ICRR: Benefits of Joining the Registry
The ICRR is committed to optimizing utility of the registry to you. There are real-time dashboards to display program quality indicators and patient outcomes; your site will be compared anonymously to other sites, as well as against yourself for change over time. There is a learning community to enable quality improvement if your program is interested.
Where patients provide post-program data, a lay summary is generated to support them in maintaining their cardiovascular risk reduction long-term. The research and user sub-committees shall provide overall updates on the registry to participating programs annually.
You have access to your program data and are the owner at all times. You can download it to excel from the registry at any time. We have a research sub-committee who may support you if you would like to analyze your site data in a different manner than is available on the dashboards, for reporting to your institution or beyond. We hope the registry data can be used for you to demonstrate the efficacy of your program and advocate for resources. Note there is a separate process to request access to data from beyond your site through the research committee.
As a contributing program, you are eligible to volunteer to serve on the ICRR user sub-committee. Terms of reference are available on the governance webpage of the CR registry dropdown menu. To express your interest, email us (iccpr.icrr@gmail.com).
You also have the opportunity to get involved in research. You may be invited to participate in research by the research sub-committee; this is voluntary. Primary data stewards who have an academic appointment, as specified in program survey on initiation of registry participation, will be recognized as “ICRR collaborators” on publications stemming from the registry (please see the Data Access & Dissemination policy on the governance webpage for more details).
Finally, ICCPR has developed a Program Certification mechanism through ICRR for a nominal fee. As a registry-contributing program, you will have already completed many of the steps to apply. See the Program Certification page on our website.
CR programs participating in ICRR, up to October 2024.