ICRR Data - Research Access and Dissemination
The ICRR research subcommittee administers registry policies supporting data access for research purposes, as well as its’ dissemination. Please note all sites have full access to their own data for internal purposes etc as per the policy below. Details on the full use of site data for care quality purposes is outlined in the ICRR Site Agreement each program signs with ICRR prior to getting started.
Access
Please read the research data access and dissemination policy for full details.
ICRR welcomes research data access requests by completing this form (data application form) and emailing to iccpr.icrr@gmail.com.
The following requests have been approved to date:
| Primary Applicant | Date Approved | Objective |
| Sherry Grace | May 1, 2023 | Comparison of ICRR data with other CR registries around the globe |
| Karam Turk-Adawi | June 16, 2023 | Cardiac rehab program characteristics and their association with patient morbidity |
| Deborah Manandi | November 5, 2024 | Cardiac rehab patient characteristics associated with depressive symptoms and quality of life outcomes in low-resource settings |
| Sophia S. Shaubnaum | November 25, 2024 | Disease management knowledge sufficiency in cardiac rehabilitation participation globally, its’ correlates and association with outcomes |
Academic Dissemination
Please find a list of peer-reviewed research outputs of the ICRR:
Publications:
- Abukhadijah HJ, Turk-Adawi KI, Dewart N, Grace SL. Qualitative study measuring the usability of the International Cardiac Rehabilitation Registry. BMJ Open. 2022; 1;12(8):e064255. Click here.
- Chowdhury MI, Turk-Adawi K, Babu AS, de Melo Ghisi GL, Seron P, Yeo TJ, Uddin J, Heine M, Saldivia MG, Kouidi E, Sadeghi M. Development of the international cardiac rehabilitation registry including variable selection and definition process. Global Heart. 2022;17(1). Click here.
- Turk-Adawi, K., Ghisi, G.L.M., Tran, C., Heine, M., Raidah, F., Contractor, A., & Grace, S.L., on behalf of the ICRR collaborators. First report of the International Council of Cardiovascular Prevention and Rehabilitation’s Registry (ICRR). Expert Review of Cardiovascular Therapy. 2023; 21(5):357-364.Click here.
- Grace, S.L., Elashie, S., Sadeghi, M., Papasavvas, T., Hashmi, F., Ghisi, G.L.M., Vargas, J.A.L., Alhashemi, M., & Turk-Adawi, K. Pilot testing of the International Council of Cardiovascular Prevention and Rehabilitation’s Registry (ICRR). International Journal for Quality in Health Care. 2023; 35(3): mzad050. Click here.
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Turk-Adawi, K., Elshaikh, U., Contractor, A., Hashmi, F., Thomas, E.E., Raidah, F., & Grace, S.L. Development and evaluation of the International Council of Cardiovascular Prevention and Rehabilitation (ICCPR) Program Certification for low-resource settings. International Journal of General Medicine. 2023; 16, 5199–5214. Click here.
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Raidah, F., Ghisi, G.L.M., Anchique, C.V., Soomro, N.N., Candelaria, D., & Grace, S.L. Promoting cardiac rehabilitation program quality in low-resource settings: Needs assessment and evaluation of the International Council of Cardiovascular Prevention and Rehabilitation’s Registry quality improvement supports. International Journal of Cardiology. 2024;404:131962. Click here.
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Grace, S.L., Hagström, E., Harrison, A.S., Phillips, S., Bovin, A., Yokoyama, M.N., Niebauer, J., Makita, S., Raidah, F., Back, M. & ICRR Investigators. Cardiac rehabilitation registries around the globe: Current status and future needs. EJPC. 2024;31(16): e117–e121. Click here.
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Elashie, S.A., Grace, S.L., Hashmi, F.A., Kim, L.B., Sadeghi, M., Ghisi, G.L.M., Vargas, J.A.L., Heine, M., Al Shamari, M.S., Sepulveda, M.J.O., & Turk-Adawi, K., on behalf of the ICRR investigators. (under review). Cardiac rehabilitation program-related factors associated with morbidity among patients in low-resource settings: Analysis from the International Cardiac Rehabilitation Registry.
Conference Presentations:
- Chowdhury, M., Turk-Adawi, K., Abukhadija, H., & Grace S.L. (2020). Development of the international cardiac rehabilitation registry data dictionary using a delphi process. Canadian Association of Cardiovascular Prevention and Rehabilitation - Canadian Cardiovascular Congress. Edmonton, Canada. October. JCRP;40:E52.
- Ghisi, G.L.M, Back, M, Hashmi, F, Grace, S.L. (2022). Cardiac rehabilitation registries across the globe. AACVPR Annual Conference. Florida, USA. September.
- Grace, S.L., Lopez-Jimenez, F. (2022). ICCPR’s new cardiac rehabilitation registry. Brazilian Society of Cardiology / World Congress of Cardiology. Rio de Janeiro, Brazil. October.
- Turk-Adawi, K, Abukhadija, H, Grace S.L. (2022). Usability testing of the international cardiac rehabilitation registry. Canadian Association of Cardiovascular Prevention and Rehabilitation Conference. [virtual] June.
- Turk-Adawi, K, Elashie, S, Hashmi, F, Papasavvas, T, Sadeghi, M, Ghisi, G.M.G., Al-Hashemi, M., & Grace, S.L. (2022). Feasibility of the International Cardiac Rehabilitation Registry. 9th Asian Preventive Cardiology & Cardiac Rehabilitation Conference (APCCRC). November. Hong Kong
- Sepulveda, M.J.O.S., Turk-Adawi, K., Ghisi, G.L.M., Tran, C., Heine, M., Raidah, F., Contractor, A., & Grace, S.L. (2023). First report of the International Council of Cardiovascular Prevention and Rehabilitation’s Registry (ICRR). 3rd World Non-Communicable Diseases Congress. Toronto, Canada. June.
- Raidah, F., Turk-Adawi, K., Elshaikh, U., Contractor, A., Thomas, E., & Grace, S.L. (2023). Development and evaluation of the International Council of Cardiovascular Prevention and Rehabilitation Program Certification. 3rd World Non-Communicable Diseases Congress. Toronto, Canada. June.
- Maria S, Q.F., Nahra, S.R., Ana Carolina, L.F., Lorainy, S. C. ,Rodrigo M. G. (2023) How to improve cardiac rehabilitation: introduction to international cardiac rehabilitation registry . Hospital de Messejana Dr. Carlos Alberto Studart Gomes - Fortaleza,Brazil . May.
- Raidah, F., Ghisi, G.L.M., Anchique, C.V., Soomro, N.N., Candelaria, D., & Grace, S.L. (2024). Promoting cardiac rehabilitation program quality in low-resource settings: Needs assessment and evaluation of ICCPR’s registry quality improvement supports. International Conference on Aging, Innovation and Rehabilitation (ICAIR). Toronto, Canada. May.
- Zende, A., Pujary, D., Deodhar, A., Sampat, J., Singh, S., Mehta, M., Dordi, M., Vaidya, S., Raina, N., & Contractor, A. (2024). Utilizing the International Cardiac Rehabilitation Registry (ICRR) data for enhanced functionaly capacity post-cardiac rehabilitation: A multidisciplinary intervention approach. ACSM. Boston, USA. May.
About the associationThe International Council of Cardiovascular Prevention and Rehabilitation (ICCPR) was created in 2010 to bring together associations dedicated to the promotion of cardiovascular disease prevention and cardiac rehabilitation globally. A named Board member from each association serves on our Council, which meets quarterly. ICCPR is an Associate International Member of the World Heart Federation. |
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